This is for everyone thinking about going gluten free/wanting to get a diagnosis of celiac disease or gluten intolerance…
DO NOT GO GLUTEN FREE UNTIL AFTER YOU’VE HAD BLOOD WORK AND YOUR DOCTOR HAS DECIDED IF YOU NEED TO HAVE A BIOPSY OR NOT.
I repeat, do not go gluten free. The celiac antibody tests will ONLY show celiac if you have been eating gluten, and a lot of it, for a decent amount of time before the tests are done. If you’re gluten free they will come back as negative, and a lot of times doctors will require you to go on a challenge diet for 4 or so weeks of heavy carbo-gluten loading to make sure that the tests come up right. So save yourself a lot of time and pain and stay on gluten until you’ve talked to a doctor. It’s the only way to get a real diagnosis, and to get a truly negative diagnosis in case it isn’t celiac/NCGI and is something else going wrong.
Especially in this day and age it’s really important to have an actual celiac diagnosis, or a gluten intolerance diagnosis from a doctor. For one thing, celiac is covered by the ADA and therefore public places like schools (colleges, high schools etc) must provide you alternative living situations or safe and affordable food for you to have access too if they are a public institution, and many other things are covered by the ADA that I won’t get into here, but it’s really helpful to have an actual diagnosis. and taxes! GF food can be written off as a medical need (if you’re willing to put in that extra work for your taxes, which I never am…) if you’re a diagnosed celiac!
Also, to be honest, I think it’s better to know 100% if you are or if you are not celiac, or if you have a gluten intolerance. So go get tested, it’s a simple blood test, your normal doctor can do it, student health can do it, any doctor can order the test.